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Video and Acknowledgements
  • ​This video is for young women with neurofibromatosis type 1 who are considering breast screening. ​
  • This information is to help you decide whether breast screening is right for you. And to explain the tests that are involved. 

PARTICIPATION IN THIS RESEARCH STUDY

Evaluation of the video

Thank you for expressing an interest in participating in our survey-based research study, to evaluate the usefulness of information provided in this video. The information in this video describes the purpose and processes of early breast screening for young women with NF1 considering breast screening. If you wish to participate in an online survey, or you would like to find out more, please click on the link provided: bit.ly/NF1videosurvey External Link or https://rnsapmredcap.nslhd.health.nsw.gov.au/redcap/surveys/?s=WART7DDATE External Link

ACKNOWLEDGEMENTS

We would like to thank the women with NF1 who have undertaken breast screening for their input in the development of this website information. We also appreciate the support of the Minister for Health, NSW Health and the NSLHD Allied Health Research Committee who have funded the project. 

Contact details:Department of Clinical Genetics
Royal North Shore Hospital
Email: [email protected]
Phone: 02 9463 1727.

This website information has been developed by researchers at the Department of Clinical Genetics, Royal North Shore Hospital and the Faculty of Medicine and Health, University of Sydney.

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