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Neuromuscular - Royal North Shore Hospital

Level 3 - Ambulatory Care Centre (outpatient clinics)

Acute Services Building (main entry level)

Royal North Shore

Reserve Rd

St Leonards

2065

Neuromuscular - Royal North Shore Hospital

Contact Us
General enquiries: 9463 1828 (currently staffed Tue-Thu only)
Referrals phone: 9463 1828 (currently staffed Tue-Thu only)
NSLHD-AccReferrals@health.nsw.gov.au &
NSLHD-RNS-NM-ClinicAdmin@health.nsw.gov.au
Fax: 02 9463 1058

Opening Hours
Tuesday: Staffed
Wednesday: Clinic time 08:45-12:45
Friday: Clinical trial patients

You will be booked into the most appropriate clinic for your condition.

 What we do

The Neuromuscular Clinic caters for adults (> 16 years) with hereditary, metabolic and acquired muscle and nerve disorders. We endeavour to facilitate access to comprehensive investigations as required, and patient-centred management in conjunction with the referring clinician. 
•    Hereditary muscle diseases – e.g. Muscular dystrophies, metabolic myopathies, channelopathies (periodic paralysis, myotonias), congenital myopathies, congenital myasthenic syndromes.
•    Acquired muscle diseases – e.g. Inclusion body myositis, autoimmune myositis, myasthenia gravis
•    Hereditary neuropathies, motor neuronopathies – e.g. Charcot Marie Tooth disease, Hereditary motor and sensory neuropathies, Spinal muscular atrophy
•    Acquired nerve disorders, motor neuronopathies – e.g. CIDP, motor neuron diseases

 What to bring

•    Relevant images/scans/blood test (CK) results (including CT or MRI scan of affected area)
•    Relevant test results (including nerve conduction studies/ EMG, muscle biopsy report if you have had them)
•    List of current medications and drug allergies
•    Your referral letter from your GP/Specialist

 When to visit us

Your GP or non-GP specialist is always your first step in seeking treatment for any condition. You will be referred to our service if your treating doctor feels that your treatment requires the input of  the Nueromuscular clinic. Once we receive the referral it will be reviewed by a doctor and you will be notified of the outcome and next steps. Please allow at least 4 weeks for this process to be undertaken. We see patients either face to face or via telehealth - your specialist will let you know what the best option is for you.   

 

Please note that phone calls from the hospital will appear as a blocked number.   

 

If you have a scheduled appointment you will receive a reminder text message.   

 

Please allow a full morning or afternoon for your appointment. Some patients require a longer review and delays can occur. 

 How to visit us

Exit off Pacific Highway and the M1 will take you to the hospital on Reserve Road in St Leonards

Bus Route 114 stops directly at the hospital

The hospital is close to St Leonards train station

The hospital is a 5 minute walk from St Leonards Station

Street and multi storey car parking are available on the Royal North Shore hospital campus. Fees apply, so please check signage. Concession parking rates are available for patients and carers. Click here for more details.

The Neuromuscular Clinic is located at Check in D. 

 

When you enter the hospital walk past the yellow lifts. The Ambulatory Care Centre will be on your right hand side between the orange and green lifts. Check in D can be found by turning left after you pass the enquiries desk. 

 Referral information

Referral Information
•    Patients name, date of birth, address, contact numbers, e-mail address
•    Reason for referral (including a suspected neuromuscular condition if known)
•    CK (creatinine kinase) level
•    Relevant past medical history
•    Current medication

**Please consider referral to the emergency department instead if:
•    Rapid progression of weakness - particularly if involves swallowing +/- breathing difficulty; or
•    CK > 15000 U/L
(As wait time for the clinic can be long.)

Inclusion criteria
•    Hereditary muscle diseases – muscular dystrophies, metabolic myopathies (including recurrent rhabdomyolysis), channelopathies (periodic paralysis, myotonias), congenital myopathies
•    Suspected acquired muscle diseases – inclusion body myositis, autoimmune myositis, myasthenia gravis
•    Hereditary neuropathies, spinal muscular atrophies
•    Acquired nerve disorders/motor neuropathies – chronic inflammatory demyelinating polyneuropathy (CIDP), motor neurone disease

Exclusion criteria
•    Non-specific pain
•    Non-specific subjective sensory symptoms
•    Non-specific fatigue/ lethargy 

 Other information

Your team
Christina Liang (Staff Specialist Neurologist)
Sharon Leaver (Neuromuscular Clinic nurse/ coordinator)
The Neurology/ Neurophysiology Fellow (Senior Neurology trainees)

 Related links