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Chronic disease

alternate text 48Connecting families affected by chronic illness and disability


 

 Livewire.org.au External Link is an online community designed especially for families affected by serious illness, chronic illness or disability where the teenager has a longer term illness.

Livewire, an initiative of the Starlight Children's Foundation, was developed to provide a safe, accepting and supportive online space for members to gain peer support and share experiences with people who understand what they are going through.

Each Livewire community is moderated and features social networking tools including chat rooms, blogs, forums and private messages. There are also entertaining and helpful articles, music, online games, videos, guests and competitions which run every week.

For information on joining Livewire, or member enquiries contact (02) 8425-5971 or email [email protected]

Muscular Dystrophy, MS & Motor Neurone


 

FlexiRest - Making Time for You


 

Neurological diseases are also supported by state based associations who have additional services such as respite, available to their members. We encourage you to contact the appropriate associations below.

Cancer Council NSW


 

Telephone support groups for cancer patients and carers

Cancer Council NSW telephone support groups External Linkoffer support and information to cancer patients, their families and carers.

You can call 13 11 20 or visit their website External Linkfor further information.

Caring for someone with cancer 

NSW Cancer Council offers many cancer support groups and education programs for cancer patients and carers.

Support groups and other programs offer valuable opportunities to:

talk with people who are in a similar situation

share experiences and information

give and receive support

share practical tips, tools and strategies.
Visit their website External Link or call 13 11 20 to find out more about the different services available to suit your needs.


 

Wig library


 

The wig library is at Royal North Shore hospital within the Northern Sydney Cancer Centre on Level 1 of the Acute Services Building. It is part of the CanSupport cancer support program.
NSLHD patients who are experiencing hair loss due to cancer treatment are provided with a personalised wig fitting by dropping in or appointment.
Patients can borrow a wig for up to nine months at a cost of $50 however if this cost can be reduced or waived based on individual circumstances.
The wig service is used mainly by women however men are using it more and more. 
Cansupport staff and volunteers will help you choose a wig, educate you on wearing the wig, wig care and provide emotional support.
A range of turbans and other headwear is available also. These are kindly donated by local groups for patients to take home.
For more information please call the wig library on 9463 1188 or 9463 1195 or feel free to drop by.

Steve Waugh Foundation


Supporting children who have rare conditions – through grants or access to other forms of assistance ​
https://www.stevewaughfoundation.com.au/ External Link

Contact Carer Support 


Tel: (02) 9462 9488