Sign In
Neuroendocrine

​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​

Prof Nick Pavlakis  image 
​Tumour Stream Lead
Prof Nick Pavlakis

Dr David Chan  image 
​Tumour Stream Lead
Dr David Chan


What is neuro​endocrine ca​ncer?


Neuroendocrine tumours (NETs) are an uncommon type of tumour that nevertheless affect hundreds of patients in NSW every year. Some of these can be biologically slow-growing but others can grow aggressively. The main function of these cells in the body is to create, store and secrete a variety of proteins and hormones for normal bodily functions. Some NETs can also make hormones that cause symptoms such as diarrhoea and flushing.



Our service​

​​

Royal North Shore Hospital is proud to be accredited by the European Neuroendocrine Tumour Society (ENETs) as a Centre of Excellence. RNSH is involved in multiple research projects advancing the understanding of NETs and participates in NET clinical trials.

Patient cases are discussed at a multi-disciplinary team meeting (MDT) to ensure the best possible treatment recommendation is made. The NET MDT is currently run fortnightly, includes expertise from nuclear medicine physicians, radiologists, pathologists and oncologists (medical, radiation, surgery and nursing).

​​

Multidisciplinar​y team (MDT) and clinics

MDT occurs fortnightly on Tuesdays
Clinics occur weekly on Thursday afternoons in the NSCC 


Diseases


  • NETs of various primary sites (e.g small bowel and pancreas)
  • Paraganglioma
  • Phaeochromocytoma



Neuroendocrine cancer experts​​​


Surgeons

Prof Jas Samra 
Prof Alexander Engel

Medical oncologists

Dr David Chan, 
Prof Nick Pavlakis 
Prof Stephen Clarke 
A/Prof Connie Diakos

Nuclear medicine physician

Dr Elizabeth Bernard 
Dr Paul Roach

NET cancer nurse coordinator

CNC Claire Kent (Monday-Thursday)​

​Cancer nurse coordinators​​

  • Claire Kent, Neuroendocrine Cancer Nurse (Monday-Thursday)

    As the specialist neuroendocrine nurse consultant, I assist in coordinating NET patients from around NSW to access consultations, treatment and care within the specialised NET Centre of Excellence at RNSH. I have been a registered nurse for 25 years with extensive experience in surgery and oncology, and as a nurse consultant since 2014. I work closely with patients, carers and the multidisciplinary team throughout the cancer care journey, providing advice and support. I have a Masters in Cancer and Haematology at Sydney University and am a member of several national cancer nursing organisations.

Affiliations/pa​rtners



Questions to ask your doctor​​
​​

When diagnosed with cancer, it's common to feel overwhelmed and forget questions to ask the doctor. The Cancer Council offers a list of suggested questions for you or your carer to ask at appointments.

These can help you be more involved in your care.




Useful links​


ChevronFor information on cancers, support and services:External LinkCancer Council NSW
ChevronFor information on cancer treatments and patient information sheets:External LinkeviQ (Cancer Treatment Online)
ChevronFor information about research, awareness and support for patients with neuroendocrine cancers:External LinkNeuro Endocrine Cancer Australia